This post has been a long time in the works. As of right now, I’m sitting in the media center downstairs at Wolfson’s waiting for Declan’s abdominal ultrasound. On my way in, I wished I had brought my laptop so I could begin writing and forgotten about their media center until check in. This post has been a long time in the works. When I closed my photography business on April 30th, I had no idea why I felt so strongly that I needed to close down and focus on motherhood, but I whole-heartedly believe that God put that on my heart because He knew what was about to happen.
This is the first in a series of blog posts I’ll be doing on my experiences over the last several months. I felt the desire to sit and write for others who may be going through the devastation of giving birth to a child, only to find out they have a congenital heart defect and may or may not survive. My hope is that through my writing about our experiences, I can shed some light on this from a parent’s perspective and give hope to those who are going through or have gone through this. No, not all CHD warriors survive. It’s an incredibly harsh reality and while I wish I could say, “Everything is going to be ok,” the reality is that I don’t know that. Only God does. What I do know, however, is that in the midst of it all, when everything seems so bleak and like all hope may be gone, God still shows up. He is still in control. I CHOSE to believe that God had a bigger purpose for Declan and carried that belief throughout the entire process. Thank God He was not ready to call Declan home to be with Him. Declan’s work here on this earth is not done.
Since his diagnosis, I have read many stories of people whose children have no survived; who God called home. I CHOOSE to believe that this is not in vain. I CHOOSE to believe that although a life may be brief, it is all but unimpactful.
Before I dive into my story, I will introduce to you to Declan Caleb Shannon; God’s recent addition to the zipper club. This tiny but mighty man is the strongest person I know, both physically and emotionally. He’s a heart breaker but a hope maker. He was born 5.25.18 at 1:02pm via c-section. He was 9lbs 3oz and 22.5 inches long. Today he is 11lbs 15oz and 25.5 inches long.